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AMPUTEES & INTERNAL HEMIPELVECTOMIES
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GLENDA
(Chilliwack, B.C.)

I was diagnosed with bone cancer in 1987 and
became a right hemi-pelvectomy amputee in January, 1988. I had a three
year old son at home and had only been married five years. It was never an
option NOT to have another child even though my family physician was
skeptical. Thanks to my prosthetist, Tony Vanderwaarde, who built me a
marvelous pregnancy socket and leg, I walked into the hospital using my
prosthetic leg and crutches on my delivery date. Tony was then working
for Sabolich Prosthetics in Oklahoma but now owns Award Prosthetics in
Burnaby, BC, and he is still doing marvelous work for amputees of all
levels. The expandable socket he made fit, for the most part, throughout
my entire pregnancy although I used it mainly for support rather than
function at the end of my third trimester. I delivered a healthy 7 pound
14 ounce baby boy, through a normal vaginal delivery. We documented the
latter part of the pregnancy and the birth on home video and I am
currently working on putting it onto a DVD which will be available through
my website at
www.glendastandeven.com It was an amazing experience to capture on
film and I'm so glad now that we did because it will certainly help answer
any questions a HD or HP will have if they want to get pregnant.
It's now been almost 22 years since I lost my leg. I've won two
silver medals in the 1990 BC Winter Games in slalom and giant slalom;
received the Rotary Club's Paul Harris Fellows Award and the Chilliwack
Woman of the Year award in 2003; the Governor General's Caring Canadian
Award in 2005; and am currently writing an autobiography with two other
cancer survivors called, 'Choosing to Smile' (please join our Facebook
group!) which will be released in March, 2010. I'm still happily married
to my wonderful husband, Rick, and our lives are full and blessed. I
choose not to wear a prosthesis as my shape changed dramatically after the
birth of my second son and I've also gained too much weight to make
wearing an artificial leg feasible. I use light-weight forearm crutches
specially designed by my prosthetist Tony Vanderwaarde to suit my
life-style and I can walk faster than most two-legged people. Tony is
trying to get me to try a peg leg while I'm working in the kitchen so that
may be a possibility in the near future... we shall see!
I think the best advice I can give to a new HP or HD is to be open
to suggestions and find what works for you. I used a leg for the first
four years but realized I could go much faster on one leg using forearm
crutches which was necessary to keep up to two active children. Losing a
leg was life changing but not in a bad way - just the outside package
changed - I'm still me!
E-mail: gstandev@shaw.ca
Personal web site: www.glendastandeven.com
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JOE (Nova Scotia)
I am 48 years old and lost the leg at age 12 to
osteosarcoma in October of 1963 [left HP]. The previous 2 years was spent in
and out of hospital about a half dozen times in an attempt to remove the cancer which
kept coming back. The cancer was in the hip close to the joint. It eventually became
malignant so there were no options except
amputation. I live in Dartmouth Nova Scotia which
is on the east coast of Canada. There is a population of close to 1 million people and
my prosthetist tells me that I am the only HP that he has worked with and the
only one he knows of in the province. So the expertise to provide HP's and HD's with
quality prosthetics is limited. However, the prosthetists that have made my limbs
over the years have done the best they can.
I can identify exactly with your descriptions of limbs made in the early
years of HP prosthetic technology. The endo construction with basically a block of
wood shaped like a chin and another block shaped to look something like a thigh with a
leather cover was heavy and cumbersome. The newer technology and materials has made a
tremendous difference in the cosmesis and function of the limb. The
component
construction and cosmetic cover produces a look that is more realistic. I never wore shorts in
public until this type of construction was used for HP's.
It has been almost 36 years since the surgery but I have always worn a
prosthesis. However time is beginning to take a bit of a toll. The
remaining
hip joint is deteriorating and is causing some discomfort. Scoliosis has been evident for
years. The lower vertabrae are kind of twisted and
cause some pain. The endurance is
becoming shorter so I'm finding that I wear the limb less than in the early years
simply because it is more comfortable, particularly in warmer weather. It is difficult to
know if this is par for the course because there are no other HP's to talk to for
comparison. I am a self employed professional photographer.
E-mail: joe.robichaud@ns.sympatico.ca
Personal web site:
www.ability.ns.ca/entrepreneur/profiles/jrobichaud.html
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TERESA (Ontario)
On March 29th, 1996 I had a hemipelvectomy
amputation. My
surgery was extensive, they also removed the left side of my tail bone and the left
side of the L4 and L5 vertebrae. This left me with a severe scoliosis, and for 2 years I
was unable to sit or stand unaided. As a complicated hemipelvectomy it was very, very
difficult to fit a socket but I was eventually able to get a prosthesis and in spite of
the prevailing medical opinions, I WALKED!! My prosthetist was
Tony van der Waarde.
It has been 10 years now since cancer, and 9 years since amputation and
being cancer free. In September 1999, I
married an amazing man who meet me one month before
I knew I had cancer. He tried very hard to stay close and
at times I made it very hard on him, but in
the end he won my heart and married me.
In 2002 we brought an amazing little girl into our home and she is great.
Since becoming a Mother I no longer
am trying to walk with a prosthesis. It was very
costly for my family and I never went back to work. I want to spend my money
and time with my daughter.
My Prosthetist, Tony in B.C.,
who made my leg had so
much faith in me that he would do the work for
free if I could get there. But the money just isn't there. If you can get
yourself to Tony I would do it, he is worth
every penny. Everything he promised me about walking is true. I was there
for 2 weeks 2 days and came home walking.
I am enjoying life. God has given me confidence in
who I am and what I look like to others. He has
blessed me with a wonderful family,
and most important LIFE. I just want
to live out each day.
I walk (wheelchair) with my daughter,
we made a very simple hook-up and I can pull her in a bike trailer, while I
walk the dogs. I do so much for her and with her.
I would be happy to talk to any one who wants to know about Tony, or my
life. If you have contacted me in the past
and didn't hear from me at the old e-mail please try again, we had computer
problems and I lost some e-mails of people trying to
connect.
Please no men looking to hook up, I am happily married and will not send you
any pictures.
God Bless.
E-mail:
teresa-harvey@rogers.com
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ARCHIE (Toronto)
I've been a hip disartic since March 2, 1983, due to bone
cancer. I was 47 at the time, now 63. I am married and have one daughter.
Until 1990 I was an executive with a public company, lost that job when it was taken over
(partly my choice, half a job or a golden handshake). I thought I'd get into the
travel business, but the Gulf War and the depression came along, so instead of buying a
franchise operation, have worked as an outside sales agent, now with an agency close to
home. I work full time at it, don't make much money but it keeps me busy.I use both a prosthesis and crutches to get around, but I had a
fall on crutches last October and dislocated my right shoulder, I'm still wary of using
the sticks when I'm on any sort of smooth tile or ceramic surface. So mostly it's
the prosthesis when I go out, sticks at home. I still golf occasionally, but took up
lawn bowls three years ago and tend to do that quite a bit in the summer. Since 1991
I've been involved with amputee sports, am secretary of Ontario Amputee and Les Autres
Sports Association and Treasurer of Canadian Amputee Sports Association. I will be pleased
to talk to anyone else in a similar situation.
E-mail: ampsport@interlog.com
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ROBERT K.
(Victoria, BC)
Ive been a Hip-Disarticulation since 1978 due to
osteogenic sarcoma which involved the head of the femur. I was 15 at the time, and my
parents allowed me to choose how to be treated, I was given the option of choosing a HD
over an AK. It was this point that allowed me to control my destiny. I was up on crutches
and whipping around the ward 2 days after surgery. I had a goal...to be home before my
16th Birthday. I also made a choice during rehabilitation, I wanted to return to regular
classes and graduate with my classmates. I received my first leg one month after surgery.
I pushed myself the first 4 years because I didnt know if the next time I went for a
Cancer check it might reoccur. I learned to distinguished between what I couldnt do
and what I didnt want to do. I completed my education and became a Professional
Accountant. I work as a financial analyst for my provincial (state) government. I wear my prosthesis 15-16 hours per day. I am an active amputee-I
hike, ski, kayak, golf, swim, play floor hockey (the goalie) and wheelchair basketball
(truly a violent game). Ive played hard over the years, always do my stretches and
flexibility is my key to avoid injury. Im not afraid to fall, I take risks and will
try out new prosthetic devices if I think they are going to benefit me.
I use a UC Davis split socket design (two pieces, joined
by adjustable cross straps in back, and belt in front). This is cooler and than the
sockets that wrap around the body, but still uncomfortable above 78F (25C). DAW graphite
hip joint (locked in the open state), Total Knee, a rotator and Quantum foot. Ive
tried and rejected many other components in the past. My prosthetist is John Girling.
I do not say I cant do something, unless it is
physically impossible. I dont blame the leg. The beauty of this is that it gives me
the freedom to choose whether I want to do stuff. I ask people not to help me unless I ask
for help, and am not afraid to ask for help when I need it. I have a pretty stubborn and
independent streak, but it works for me.
E-mail: Robert.Katzer@gov.bc.ca
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JASON
(Australia)
Age 27. Became a Hip-disarticulation in Dec 1997 following a
motorcycle accident. After 4 tries, I got my prosthetic limb. A carbon fibre
strut, seattle light foot, 4 bar knee etc. I wear the limb out irregularly
at the moment as I'm much slower than being on crutches and I'm pressed for
time. I fair o.k in the leg, I haven't fallen over yet (I expect to). When I
have a more scheduled routine I expect to wear the leg more regularly.
E-mail: Soder7@ozemail.com.au
Personal Web Site: www.ozemail.com.au/~soder7 |
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AMPUTEES & INTERNAL HEMIPELVECTOMIES
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