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BILATERAL AMPUTEES & INTERNAL HEMIPELVECTOMIES

JOE (Nova Scotia)  
I am 48 years old and lost the leg at age 12 to osteosarcoma in October of 1963 [left HP]. The previous 2 years was spent in and out of hospital about a half dozen times in an attempt to remove the cancer which kept coming back. The cancer was in the hip close to the joint. It eventually became malignant so there were no options except amputation. I live in Dartmouth Nova Scotia which is on the east coast of Canada. There is a population of close to 1 million people and my prosthetist tells me that I am the only HP that he has worked with and the only one he knows of in the province. So the expertise to provide HP's and HD's with quality prosthetics is limited. However, the prosthetists that have made my limbs over the years have done the best they can.

I can identify exactly with your descriptions of limbs made in the early years of HP prosthetic technology. The endo construction with basically a block of wood shaped like a chin and another block shaped to look something like a thigh with a leather cover was heavy and cumbersome. The newer technology and materials has made a tremendous difference in the cosmesis and function of the limb. The component construction and cosmetic cover produces a look that is more realistic. I never wore shorts in public until this type of construction was used for HP's.

It has been almost 36 years since the surgery but I have always worn a prosthesis. However time is beginning to take a bit of a toll. The remaining hip joint is deteriorating and is causing some discomfort. Scoliosis has been evident for years. The lower vertabrae are kind of twisted and cause some pain. The endurance is becoming shorter so I'm finding that I wear the limb less than in the early years simply because it is more comfortable, particularly in warmer weather. It is difficult to know if this is par for the course because there are no other HP's to talk to for comparison. I am a self employed professional photographer.
E-mail: joe.robichaud@ns.sympatico.ca
Personal web site: 
www.ability.ns.ca/entrepreneur/profiles/jrobichaud.html

TERESA (Ontario)Teresa
On March 29th, 1996 I had a hemipelvectomy amputation. My surgery was extensive, they also removed the left side of my tail bone and the left side of the L4 and L5 vertebrae. This left me with a severe scoliosis, and for 2 years I was unable to sit or stand unaided. As a complicated hemipelvectomy it was very, very difficult to fit a socket but I was eventually able to get a prosthesis and in spite of the prevailing medical opinions, I WALKED!! My prosthetist was Tony van der Waarde.
 
It has been 10 years now since cancer, and 9 years since amputation and being cancer free.  In September 1999, I married an amazing man who meet me one month before I knew I had cancer. He tried very hard to stay close and at times I made it very hard on him, but in the end he won my heart and married me.
In 2002 we brought an amazing little girl into our home and she is great. Since becoming a Mother I no longer am trying to walk with a prosthesis. It was very costly for my family and I never went back to work. I want to spend my money and time with my daughter.
My Prosthetist, Tony in B.C., who made my leg had so much faith in me that he would do the work for free if I could get there. But the money just isn't there. If you can get yourself to Tony I would do it, he is worth every penny. Everything he promised me about walking is true. I was there for 2 weeks 2 days and came home walking.
I am enjoying life. God has given me confidence in who I am and what I look like to others. He has blessed me with a wonderful family, and most important LIFE.  I just want to live out each day.
I walk (wheelchair) with my daughter, we made a very simple hook-up and I can pull her in a bike trailer, while I walk the dogs. I do so much for her and with her.
I would be happy to talk to any one who wants to know about Tony, or my life. If you have contacted me in the past and didn't hear from me at the old e-mail please try again, we had computer problems and I lost some e-mails of people trying to connect.
Please no men looking to hook up, I am happily married and will not send you any pictures. 
God Bless.
E-mail: teresa-harvey@rogers.com

 
ARCHIE (Toronto)
I've been a hip disartic since March 2, 1983, due to bone cancer.  I was 47 at the time, now 63.  I am married and have one daughter. Until 1990 I was an executive with a public company, lost that job when it was taken over (partly my choice, half a job or a golden handshake).  I thought I'd get into the travel business, but the Gulf War and the depression came along, so instead of buying a franchise operation, have worked as an outside sales agent, now with an agency close to home.  I work full time at it, don't make much money but it keeps me busy.

I use both a prosthesis and crutches to get around, but I had a fall on crutches last October and dislocated my right shoulder, I'm still wary of using the sticks when I'm on any sort of smooth tile or ceramic surface.  So mostly it's the prosthesis when I go out, sticks at home.  I still golf occasionally, but took up lawn bowls three years ago and tend to do that quite a bit in the summer.  Since 1991 I've been involved with amputee sports, am secretary of Ontario Amputee and Les Autres Sports Association and Treasurer of Canadian Amputee Sports Association. I will be pleased to talk to anyone else in a similar situation.
E-mail: ampsport@interlog.com

ROBERT K. (Victoria, BC)
I’ve been a Hip-Disarticulation since 1978 due to osteogenic sarcoma which involved the head of the femur. I was 15 at the time, and my parents allowed me to choose how to be treated, I was given the option of choosing a HD over an AK. It was this point that allowed me to control my destiny. I was up on crutches and whipping around the ward 2 days after surgery. I had a goal...to be home before my 16th Birthday. I also made a choice during rehabilitation, I wanted to return to regular classes and graduate with my classmates. I received my first leg one month after surgery. I pushed myself the first 4 years because I didn’t know if the next time I went for a Cancer check it might reoccur. I learned to distinguished between what I couldn’t do and what I didn’t want to do. I completed my education and became a Professional Accountant. I work as a financial analyst for my provincial (state) government.

I wear my prosthesis 15-16 hours per day. I am an active amputee-I hike, ski, kayak, golf, swim, play floor hockey (the goalie) and wheelchair basketball (truly a violent game). I’ve played hard over the years, always do my stretches and flexibility is my key to avoid injury. I’m not afraid to fall, I take risks and will try out new prosthetic devices if I think they are going to benefit me.

I use a UC Davis split socket design (two pieces, joined by adjustable cross straps in back, and belt in front). This is cooler and than the sockets that wrap around the body, but still uncomfortable above 78F (25C). DAW graphite hip joint (locked in the open state), Total Knee, a rotator and Quantum foot. I’ve tried and rejected many other components in the past. My prosthetist is John Girling.

I do not say I can’t do something, unless it is physically impossible. I don’t blame the leg. The beauty of this is that it gives me the freedom to choose whether I want to do stuff. I ask people not to help me unless I ask for help, and am not afraid to ask for help when I need it. I have a pretty stubborn and independent streak, but it works for me.
E-mail: Robert.Katzer@gov.bc.ca

JASON (Australia)jasthumb.jpg (12774 bytes)
Age 27. Became a Hip-disarticulation in Dec 1997 following a motorcycle accident. After 4 tries, I got my prosthetic limb. A carbon fibre strut, seattle light foot, 4 bar knee etc. I wear the limb out irregularly at the moment as I'm much slower than being on crutches and I'm pressed for time. I fair o.k in the leg, I haven't fallen over yet (I expect to). When I have a more scheduled routine I expect to wear the leg more regularly.
E-mail: Soder7@ozemail.com.au
Personal Web Site: www.ozemail.com.au/~soder7

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BILATERAL AMPUTEES & INTERNAL HEMIPELVECTOMIES

 

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This site last updated on 12/1/2003