PROSTHETICS
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There are several reasons why it is so difficult to make a prosthesis fit the high pelvic levels of amputation. We are rare, and the average prosthetist will see only one or two in his professional lifetime. There are few published statistics. The only one I was able to find is that hip-disarticulations represent about 2% of all amputees. And I could not find any statistics about how many hemipelvectomies exist at all. Therefore it is not surprising that unless they have a special interest or talent, few prosthetists have the experience necessary. Finding a good prosthetist is the first hurdle.
We have no residual limb to attach the prosthesis. It must be attached to the remaining torso. Many have tried using a prosthesis but gave up because the socket was just too uncomfortable to wear. Fortunately this situation has improved in the last several years with new concepts in socket fit and the introduction of softer more comfortable socket materials. An understanding of these concepts and what's available will make you a more informed consumer. If you have tried a leg in the past, but rejected it because of socket fit, you owe it to yourself to learn about what's new and how this situation has changed for the better.
The lack of a hip joint is common to both hip-disarticulations and hemipelvectomies and contributes to our problems. We have nothing to activate a prosthesis. Replacing all 3 leg joints with artificial parts is a complicated, difficult process. Advances have been made in components such as lighter weight pylons, hips, knees and feet. Activating a leg and walking has been made easier with the introduction of energy returning hips and feet. Take the time to educate yourself about your options in new components.
Above all remain realistic in your expectations. Keep in mind that it will always be an artificial leg and will never feel the same or fully replace the one you lost. No matter how talented, creative or expert, prosthetists are not God, nothing man made will be as good as what Mother Nature provided. Making a leg for our levels is an expensive, time consuming, sometimes aggravating, and frustrating experience, for both you and your prosthetist. Work in conjunction with your certified prosthetist (CP), and be understanding of the limits of technology. There are no miracles. Only time, perseverance and patience will bring successful results.
