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SUPPORT NETWORK
USA - ROCKY MOUNTAIN REGION
USA - EASTERN REGION
USA - CENTRAL REGION
USA - WEST COAST REGION
EUROPE
CANADA & AUSTRALIA
BILATERAL AMPUTEES & INTERNAL
HEMIPELVECTOMIES
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JUDY (Albuquerque,
New Mexico)
I'm 30 years old, originally from Mexico, so I'm bilingual, fluent in
Spanish and English! I lost my right lower extremity from the hip at age
11 from osteosarcoma (I lived in the US by then). I didn't use my HD
prosthesis for a year as I was taking chemotherapy, I was too weak, I
couldn't walk far with my prosthesis without getting too tired. After my
year of chemo was up, I began using my prosthesis part time in middle
school. By the 7th grade, I couldn't go without! I'm a full time user,
sometimes I even have it on for 19+ hours/day when I go western country
dancing-I love it!! I do tons of walking being a practitioner in
Prosthetics and Orthotics! I love what I do, I love being able to help
people regain life again! I truly believe that a second chance to life was
given to me because of the amputation. I treasure life and live it to its
fullest! I know I have little limp when I walk, but hey, I can walk and
best of all, I can go outside and breathe the air and let the sun's warmth
remind me that I live- I celebrate LIFE!
I have recently relocated back to Albuquerque, New Mexico, my home town.
I have taken a great opportunity for both personal and professional growth.
I now work for a small private prosthetic and orthotic company called Center
for Prosthetic and Orthodic Design, (www.centerforpandodesign.com).
I have worked with these guys in the past
and I like the fact that they really care about the patient. Personally, my
life has been great so far. I recently celebrated 3 years of marriage, and
it’s been great. We’ve been thinking about starting a family, and
prosthetic designs are being researched. Ideas have been blooming….it’s
been an exciting time. My email has changed for those who would like to
contact me.
B. Judy White, CPO and HD amputee
E-mail:
bjudywhite@yahoo.com |
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ARLENE (Wyoming)
I have spent my entire life involved in athletics. Including - all track
events, horseback trick riding and barrel racing. I was an expert water
skier, perfecting tricks, surfing, pyramids, one leg shoulder stand, and
hanging by one leg from a mans shoulders. Unfortunately it was a freak water
skiing accident in 1994 which took my whole left leg. ..After eight life
threatening days, I survived to the amazement of all the doctors! With a
left hip disarticulation, broken arm, teeth; my finger and my ear were
almost cut off! I was 64 at the time and thought I would live the rest of
my life doing nothing!!!
I made up my mind I was going to go on and continue
with all the volunteer activities I had been doing before, including
directing the equestrian drill team, the “Dandies” from the Cheyenne
Frontier Days and the scheduling and chaperoning for Miss Rodeo America in
Las Vegas (which was coming up in 2 months after my amputation). Yes, I
realized I would be handicapped, but I soon figured out a bad attitude is
the worst handicap anyone can have. Following a short course of Rehab with
a therapist in Cheyenne, I flew to Las Vegas by myself and got in a rental
car, walking with crutches, one leg and a broken arm!
Five months after the accident I went against 3
orthopedic doctors advice not to try a prosthesis, they told me they had
never seen anyone “at my age” -64, with a hip disarticulation, be able to
adapt to a prostheses. However, a prosthetist named Jo Leal was recommended
to me and he made my first new leg. At first I could not even take a step,
even with the help of all around me, but then we went down to the swimming
pool. I put it back on, with a 5 lb. weight on my foot. Instantly I could
walk while holding on to Jo, and after 45 minutes…by myself! It was a
terrific help to get the feel of how to move my waist and do the pelvic
flip. Being able to put my weight on the prosthesis without the fear of
falling was invaluable. I wish that more people had the opportunity for the
hydrotherapy training.
Jo has retired now and I am going to Kevin Kohler and
Mike Pack, both C.P.’s at Artificial Limb Specialist in Phoenix AZ. They are
up to date on new components and very understanding and accommodation to all
my needs and ideas.
I knew in the beginning I had to talk about it and find
some humor in all of this to be able to cope and continue my work with all
the young girls. They all helped name my leg Jessabelle, she is very human
to me and I depend on her a lot. I tease her and even cry with her! I am so
thankful I took the extra effort to get the prosthesis.
I lost my husband to a heart attack in 1997, that loss
has been much harder than the loss of my leg. He was so supportive to me,
always knew just what to say and do.
I have water skied again since I lost my leg. Didn’t
stay up too long, but at least I got back in the water behind the boat! I
still ride horses, have to be lifted on the horse. I
continue with all of my volunteer projects and keep adding more so I
keep very busy! I also swim a mile a day, to keep my leg and arms as strong
as I can. I also find it good mental therapy. I believe that staying in
good shape and a good attitude are our most important assets, and only I
can control that!
E-mail:
arlene.k@earthlink.net |
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TIM (Wyoming)
In August of 1992 I was diagnosed with a benign
osteochondroma located on my lower spine (S-1). I underwent a lengthy and
dangerous surgery in an effort to resect the tumor and retain my leg.
Within 5 years I had a reoccurrence of the tumor and underwent a similar
surgery. The tumor had changed into a malignant chondrosarcoma and
reoccurred again one year later. I was not yet willing to lose my leg and
again underwent a limb sparing resection. The tumor was back within 3 years
and in December of 2000 I had a complete hemipelvectomy in an attempt to
stop the cancer from spreading. I was born in Mesa, Arizona and have lived
on Guam as well as in Quito Ecuador, Fairhaven Maryland, Vail Colorado and
Kimball Nebraska before settling in Torrington Wyoming last year. I am 36
years old and am married to a beautiful and wonderful woman named Dawn. We
have been blessed with two daughters, Sierra and Britney. Dawn and I are
Burger King franchisees operating two restaurants.
At the time of this writing, I am only 6 months into my
new life as an amputee. Although I am dealing with quite a bit of pain I
manage to get around quite well. I prefer to use forearm crutches and a
wheelchair for now, but I am looking forward to trying out a prosthetic leg
in the near future. I give credit for my rapid adjustment to life without ˝
my pelvis and my right leg to the support I received from my family, the
people who I have met through this website, my other friends and my church.
My advice to any new HP or HD is to learn as much as you can from the small
group of people who have already been there. I feel truly blessed to have
become a member of such a strong and caring group. I have also gained a lot
of strength by getting involved with the Rehabilitation Unit of our local
hospital. As an HP or HD we are very visual examples of what obstacles
people can overcome with a strong faith and determination to persevere.
Feel free to contact me at:
E-mail:
forces@bresnan.net

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KATYA (Arizona)
My name is Katya,
and I am 16 years old. I actually was born a
hemipelvectomy, without my left leg. I was adopted from Russia by my
new family in Tucson in 1992. I used to hop around all over the place
but now I cannot do that seeing how I am bigger and I don't want to put any
more stress on my joints.
It hasn't been hard to
get used to wearing a prosthesis since I started wearing one when I was 5
years old. I had a little foot at my hip with one toe, but had that
amputated after I came to the US which sure makes wearing a prosthesis much
easier. I've also had a lot of surgeries for some other congenital
problems. I still have phantom pain sometimes which actually can get
annoying at times.
My friends don't seem to care that I have one leg.
Some of them are surprised when I come to school without my leg, they think
I have two legs....what a laugh! I attend my local school and
participate in all activities including P.E.
I have a 504 Accommodation
Plan which allows me to modify certain activities, use the elevator, etc.
I enjoy reading, swimming, and all kinds of crafts, especially bead weaving, knitting and
sewing, and I'm an enthusiastic participant in our family's informal, backyard soccer
games.
My current prosthesis consists of an acrylic bucket socket, an Otto Bock,
modular, titanium hip joint, an Otto Bock safety knee, and a Flexfoot
Vari-flex foot.
It has an endoskeleton with a foam cosmetic covering. We would highly
recommend our prosthetist, Danette Larson, who is with Pongratz Orthotics
and Prosthetics in Tucson. Danette
has made all of my prostheses, since 1993, and has become a good friend, as well as a
trusted professional.
I have been to 2 of the
I-CAN meetings and met many of the amputees, a great experience I think.
Anyone is welcome to e-mail and ask me questions.
E-mail:
beadmaster4@cox.net
Addendum from
Katya's Mom:
We have found a wonderful resource for parents of congenital, or early
acquired, amputees in the International
Child Amputee Network (I-CAN)
. We also offer our personal support to anyone who needs it, particularly to
those with children who have limb differences.
E-mail: momto8kids@cox.net
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JUNE
(COLORADO)

I became a left hip-disartic on January 5, 1999. I had a
benign tumor on my sciatic nerve. I have dealt with this since 1989 with
various treatments, i.e. surgery, chemo, radiation, experimental drugs. The
tumor finally shrank after my second round of radiation therapy and became
dormant. However, due to all the radiation I received my leg withered and
became paralyzed, no strength, useless. After moving to Zurich Switzerland
(1996-2001) I found that I had to have my hip replaced twice. In order for
me to get around I resorted to crutches. My doctor and I decided that if I
wanted to walk without crutches I would have to have a leg brace. I went
through two different leg braces, the second of which caused a wound on my
bum that resulted in an infection.
I spent 7 months in the hospital tethered to an IV stuck in my neck feeding
me massive doses of antibiotics. Over a seven-week period during that stay I
had six operations to get rid of the infection including one to remove my
hip replacement. Needless to say, none of this worked and I finally
underwent the amputation. My amputation
surgery went well and I healed nicely. I used prosthesis for about a year
but gave up. I experienced a number of recurring infections due to having no
tissue between my skin and the ischium (sitting bone). I was hospitalized a
number of times for a week at a time over a three year period. Finally in
February 2001 I went under the knife again to remove part of the ischium.
Since then, I have been trouble free. I do not use a prosthesis as I find
for my lifestyle I move more easily and quickly on crutches. I use the
LiteStix titanium forearm (cuff) crutches from Thomas Fetterman. My life is
back to normal. I garden, cook, make stained glass windows, ride my
motorcycle, shop, etc.
Throughout this entire ordeal, my husband has been my saving grace. He is
always there for me and encourages me to try new things.
E-mail: junes@meretrx.com
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MARY (Vail,
Colorado)
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Mary and her family |
I became a (L) Hemipelvectomy in Jan
88 due to osteosarcoma. Im a full time prosthetic user and walk with no
assistive devices. I work full time as a Physical Therapist through Home Health Services.
I come from a large family and my dream has always been to have a family of my own. This
has not come easy, my first husband couldnt accept my amputation, and our marriage
broke up. Now happily married to my second husband, Paul, Im the mother of
three sons, Benjamin, David
and Sebastian. Life is good. As a full time working Mom and wife, its not easy, a lot of
work, but more than worth it.
I was out of my leg during the latter part
of my pregnancies, but now
I'm back into my old prosthesis.
I'm having a new leg made and because of my active
professional and personal life and I'm going to try the
C-Leg. I'll
let you know how this works out for me. Meanwhile, I stay in shape by skiing, biking,
hiking and trying to keep up with my boys.
I'll be attending the next ACA convention in Boston over the July 4th
weekend, and will participate in the gait analysis clinic.
E-mail: mwitt@vail.net
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DORIE (Montana)
Im a hemipelvectomy since 1993. I live on a farm and
ranch in Montana with my husband Jim. We have 4 children, 3 boys and our baby girl Kateri
was born in 1998. She is a blessing. I use a wheelchair at home and forearm crutches
outside. I had a leg that I used before my pregnancy, but Im now in the process of
getting a new leg. So far I have a strut for the thigh and a locking knee that I really
like. Im very interested to see what works for others.
E-mail:
jrush@midrivers.com
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GABRIELLE
(Colorado)
Age 29. I was diagnosed with an osteogenic sarcoma my
freshman year at college. Following chemotherapy, I had a left hemipelvectomy 11 years ago
and was onto a whole new life. I was told by my doctors that I would never be able to
"functionally" use a prosthesis and would have to rely solely on crutches, so
initially I did. I just wanted to be "whole" again. Thankfully, I found my way
to some excellent prosthetists and received my first leg one year later. I wasnt
expecting much, I believed it would be purely cosmetic, but with determination and
practice I learned to walk without any aids and became a very good walker.My greatest supporter has always been my husband. We had been
dating for only 4 months before my diagnosis, but he was there for every trial and
tribulation and for every celebration. To him, I am just as beautiful now as I ever was,
and he tells me so many times a day. We married and are the proud parents of our son,
Addison, now 2 ˝ years old.
After my amputation I returned to college and graduated
with a BA in Psychology and went on to receive a Masters in Public Health. Ive been
working in the local health department for 5 years as a Health Education Specialist.
Family obligations and work duties keep me busy, but when I have free time I enjoy
reading, sewing, gardening and just having fun with my husband and my son. I love to swim,
and enjoy downhill skiing. Ive also tried water skiing, but with a little less luck!
Overall, life has been very rewarding!
My first socket was made using a silicone material.
Although Im not very knowledgeable about the mechanics and components, Ive
become a little more vocal. Ive been offered different materials but I have
continued to request the silicone. The 3 other parts of my prosthesis that I could not
live without are my adjustable foot, a torque absorber and my rotator which allows me to
cross my legs. I wear my leg about 12 hours per day, walk without aids. I dont use
it when Im at home or our and about with my son. Some things I do better with just
the crutches, and handling my son is on of them.
I can honestly say that I rarely think about being
different and I definitely dont think that Im disabled. I am proud of what I
have accomplished and of what I can do. Actually my self esteem is stronger now after my
amputation than it has ever been. Not to say that I havent had some very down
trodden moments. For those of you who are new amputees, let me tell you it does take work
to get to this point!!! I wasnt going to let cancer and the loss of a leg alter my
goal to have a happy life.
E-mail: Gvergara@co.weld.co.us
My daughter, Adalyn Rose Vergara, was born on
February 17, 2000 -- 10 lbs. and 20 inches, normal delivery. I
returned to work 3 months after her birth.
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USA
- EASTERN REGION
USA - CENTRAL REGION
USA - WEST COAST REGION
EUROPE
CANADA
& AUSTRALIA
BILATERAL
AMPUTEES & INTERNAL HEMIPELVECTOMIES
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